Senescence

Senescence. What a pretty word for “to deteriorate”, or to put it more gently, “to grow old”.

A friend posted a link to an opinion article written over two years ago by Dr. Craig Bowron for The Washington Post: Our unrealistic views of death, through a doctor’s eyes. Why it resurfaced two years after its original publication date is determined by some weird algorithm only social media understands, but every now and again I get something worthwhile out of that mystical metric.

This is a well-written piece from the point of view of someone who is confronted with death and dying every day, and as I read the article, the voice I heard, speaking in the first person, came from someone who was tired – not of the dying, but of those of us who are in denial of our eventual end.

For many Americans, modern medical advances have made death seem more like an option than an obligation.

My grandmother will have been dead for 22 years this month. My mother still blames herself for “not doing enough” for a woman who was in her 80s and rapidly declining in health. When she’s not blaming herself, she’s blaming the physicians, the hospital, the nursing home…when I once confronted her with what I thought was painfully obvious, “Mom, she was going to die eventually”, the stricken look on her face said what my mother couldn’t: how dare I presume she would ever die. That my mother believed this, or lived in a version of reality where this was the truth, frightened me. The last thing I wanted for myself is a long, protracted death or a prolonged suffering, so naturally, it’s not something I want for her. Do you have any idea how difficult it is to have the “Do Not Resuscitate” conversation with someone who doesn’t think anyone should die?

Sequestering our elderly keeps most of us from knowing what it’s like to grow old.

I grew up in a multi-generational household, and I saw first hand what it was like to grow old. For all intents and purposes I grew up in Coney Island Hospital where my grandmother was a frequent inpatient. Our lives revolved around Grandma’s medication clock; we all ate a salt-free heart-condition diet; and we never went too far from home lest a trip to the hospital was imminent. I grew to learn what the sound of her breathing was supposed to sound like, and what to do when it didn’t. When my grandmother started to have transient ischemic attacks, my mother refused to believe these were strokes, “it will pass” she’d say – and yes, about 12 hours later, they did. I once woke up to the sound of something falling off a table – I wasn’t so much a light sleeper as I was tuned to the familiar sounds of my grandmother’s routine – and I shot out of bed in time to catch her mid-fall during one of these TIAs. She tried to explain to me with her face half-paralyzed that she was trying to take her pills – she made a gesturing sweep with her left hand trying to grasp the pill bottle which I had picked up off the floor, and I knew what was wrong.

We don’t see the elderly in our day-to-day existence. How many elderly do you work with? How about at the store? Think about when you see them, and who you see them with. We grin stupidly at the commercial of the elderly couple still holding wrinkled and age-spotted hands, and say that’s how we want to be when we’re old – but do we really? We admire the men and women who salsa dance and do yoga or parachute out of airplanes, and we coo at them like we do at babies who smile for us, isn’t it precious that these old people haven’t turned into old people.

Suffering is like a fire: Those who sit closest feel the most heat; a picture of a fire gives off no warmth.

I’m about the age my mother was when my grandmother started to have massive coronaries (there were supposedly four). My mother and grandmother had never really lived apart for 40ish years, and once my grandmother “got sick”, my mother then spent another 20 years trying to stop my grandmother from dying – to the extent that she dedicated her entire life, and, some significant parts of mine, to that cause. I, on the other hand, haven’t been living near my mom for the last 20-odd years, and while mom has had several medical issues over the last 15 years, until recently, they’ve not been at the “sudden death”-level scary of a massive coronary. It’s not that I’m in denial, it’s that I ran away to live my life while I could. I got burned by that fire; there’s a place in my soul that is blistered and raw, still.

I don’t want my mother to suffer, and I may have said this before or elsewhere but, this is as good as it’s going to get for her. If she has a string of good days, that’s good. it will never be “better”. It can always get “worse”. I dread worse.

Almost everyone dies of something.

Given the choice, I would like to die of bliss.

Also read The Dying of the Light

Fear

I’m working on facing my fears. I’ve lots of them.

I must not fear. Fear is the mind killer. Fear is the little death that brings total obliteration. I will face my fear. I will permit it to pass over me and through me. And when it has gone past I will turn the inner eye to see its path. Where the fear has gone there will be nothing. Only I will remain. – Bene Gesserit Litany against fear – Dune

I went to see my mom last month, and since then time has gotten away from me. Today, several people commented on how tired I look. When I hear that, I become afraid. I do not want to be tired, but I’ve been tired for months.

When people ask me how my mom is doing, I tell them, “good, today”. It’s an honest answer. She could live another day, she could live another thousand days. It’s easier than confronting the fact that being stable, having a good day, is about as good as it’s going to get. She’s never going to get “better”. I can accept “good”. I am afraid of “worse”, because I don’t know what I’m going to do if she gets worse.

I’m in limbo, which for me is terrible. I realized the other day that I’m afraid to do anything for myself. I’m afraid of just living my life because I know that at any moment, everything can just go sideways. Coasting, holding pattern, treading water – these are all descriptions of what I feel like I’m doing – or rather, point to the fact that I am not doing. Well, not for myself anyway.

It’s not easy, and I’m struggling sometimes. I’m afraid of admitting that. Balancing my mother’s needs with my own is less balance and more trying to keep my own needs from being completely neglected. While her needs have moved to a more “administrative” nature (i.e., making sure all her bills are paid on time), there’s still the feeling that I should be doing more, that I need to have a plan for what I haven’t yet imagined will come. There is the fear that no matter what I do, it will not be enough.

As for myself, I guess I’m admitting my problem, right? Something something half the battle?

Only skin deep

Like many women my age, or maybe like many women of all ages, I’ve fallen victim to the myth that I can put off “looking older” by slathering my face and body with some chemical and/or natural concoction. I spent part of my day today cleaning the bathroom, which involved some minor purging of said concoctions that I no longer use or have expired or I didn’t like for one reason or another.  Creams and lotions; anti-wrinkle, anti-aging, anti-blemish; toning, firming, moisturizing…some do just one of these things, some do nearly all of them, and not one of them will stop the fact that I am aging. All the face cream in the world isn’t going to stop the fact that I am getting older.

It’s getting older or death, right? I mean, these are the only choices; I either live, and age as a part of living, or I die.

At some point my body is likely going to stop being able to do the things it used to do. But even if I stay physically active and healthy and live to be 80, I’m pretty sure I’m not going to look 40. Sure, there are interventions that can “help” keep me “looking younger”. Right. I’ll still have an 80 year old body with a 50 year old face. Do I want that? Well, if I have to chose a way to get old, I would take a healthy, active body and healthy, active mind over just looking younger.

So how do you keep your body and mind healthy and active? One of the hardest things for me is putting myself as a priority. I have an active gym membership, but I haven’t gone in 7 months. Do I need a gym to stay healthy and active? No, but it wouldn’t hurt, especially since I have a desk job. Keeping my body moving will be key as I confront the days, weeks and months ahead. I’ll come back to this topic in a month or so, to see what commitments I’ve made to myself to keep healthy and active.

When the phone rings

I know that when I get a call from an unfamiliar phone number with a Florida area code, the news is not likely going to be good.

The news delivered when I answered was that my mother was in the hospital, taken there by ambulance the previous day (or night, the caller wasn’t sure). Mom had not been feeling well for over a month, complaining of abdominal pain that got worse when she ate, so bad in fact that she stopped eating solid foods altogether. Rounds of tests revealed nothing, and she continued to be told by her doctors (primary, gastroenterologist) that there was nothing wrong and she should just try to eat. She was living on Ensure (my recommendation when I found out she wasn’t eating at all). My mom isn’t someone who is willingly going to go to the hospital, so the pain must have been really, really bad.

Everything comes to a screeching halt at that point. I was on my way in to work, which didn’t seem to matter now that I had to figure out how I was going to get down to Florida. Oh, and that was the week of yet-another-snowstorm, which was descending upon the Boston area that evening; there was no way I was going to get a flight out that day. Or night. Or the next day. Or the day after. It was four days after I received the news that I was finally able to get down there.

During a crisis I apparently go into “do mode”, planning and executing as my brain floods with information. Fly down; rent car; where is the house key? Pack bag: warm-weather clothes, bring a sweater, one pair of shoes should be enough, you’re not going anywhere fancy, just to and from a hospital for hopefully not very long. The plan was to be there about a week, assuming Mom would be discharged soon after I got down there, and I could get her settled in back home before I headed back. I could work remotely for the few days that overlapped. I had a plan, and it was all going to be okay.

I had a plan, that much was true. But as they say, and then the plan met the enemy…